Image credit: Mike Hutchings (REUTERS)
International cricketer, JP Duminy has his sights set on raising R400 000 in conjunction with the South African Bone Marrow Registry – the figure that’s still needed for them to match donors with patients, suffering from life-threatening blood disorders who can’t afford it.
Alicia Venter, Head of Patient Services at the SABMR says for many who don’t have medical aid, the costs associated with finding a donor are a barrier to getting the life-saving treatment they need.
“These costs include the search for an unrelated donor match in cases where no suitably matched donors are found among family members, testing and verification, the procurement and transportation of stem cells (from anywhere in the world), as well as travel and accommodation of the donor should the collection centre be far from home. Costs related to bone marrow stem cell transplants from international donors are more than double that of local donors.
“Our Patient Assistance Programme is available to patients who are unable to obtain adequate funds for the treatment or in cases where their medical aid doesn’t cover donor searches, despite appeal,” explains Venter.
The SABMR’s Give a Little Save a Life campaign, launched on donations based crowdfunding platform, BackaBuddy, kicked off on the 10th of December and is being steered by Duminy, who is a long-time ambassador for registry.
Thus far, the crowdfunding campaign has raised over R140 000 towards their fundraising target of R400 000.
The COVID-19 pandemic has resulted in all the SABMR’s events being cancelled, which usually brings in the bulk of the funds annually for the Patient Assistance Programme.
“Right now, there are two young South Africans awaiting bone marrow stem cell transplants, whose families can’t afford the cost of finding a donor.
“One is a 6-year old boy from Gauteng who has been diagnosed with Acute Lymphocytic Leukaemia and the other a 19-year old girl from the Free State who has Acute Myeloid Leukaemia. Their only hope of survival is a stem cell transplant. By rallying together, we can raise the funds to make it a reality and give them the second chance they deserve. In my life, I’ve experienced many exhilarating moments – both on and off the field – and wish the same for these two young patients and others who are in a similar position. If you have the means to give, even if it’s just R50, you’ll never regret it.”
At any given time, there are more than 200 patients in SA that need a bone marrow transplant – unfortunately, many of whom can’t afford it. While it’s been a tough year with very little funding coming in, the SABMR managed to redirect funds from its own reserves toward the programme. This has helped to cover some of the key costs associated with finding suitably matched unrelated donors for eight patients.
Kamiel Singh, Head of Sustainability at the SABMR says while this year’s Give a Little Save a Life campaign will be solely online, he hopes it will galvanise a new generation of social media-savvy fundraisers that will support the SABMR’s efforts.
“Social media enables people to engage with each other and healthcare in ways that were almost unimaginable a decade ago. By combining the power of social media and sporting heroes such as JP Duminy, we hope to raise enough funds to make a real difference to the lives of hundreds of patients suffering from blood disorders in the coming year,” says Singh.
Donate to the SABMR’s Patient Assistance Programme here:
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Connect with the SABMR
The SABMR (NPO) was established in 1991, motivated by the concern that although bone marrow transplants were a life-saving treatment option, they were only available to patients with a matching donor in their family. Today, the SABMR searches both locally and internationally for donors, thereby making collaboration with international registries and observing universal standards of practice essential.
To date, the SABMR has helped save the lives of over 500 patients with life-threatening blood disorders by matching them with healthy, unrelated bone marrow donors from South Africa and the rest of the world.
According to SABMR, Sustainability Portfolio Manager, Kamiel Singh, there are currently only 73 000 donors registered on the site to cater to over 57 million South Africans.
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South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far raised over R200 Million.
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