rare disease

Health

Twin’s unexpected death reveals rare diagnosis, that could spare her sister’s life

May 13, 2022May 13, 2022

Reading Time: 2 minutes …

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Health

Single mom’s life-long sacrifice, caring for her son (35) who has a multitude of incurable diseases

April 2, 2022April 3, 2022

Reading Time: 4 minutes …

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Health

Rare Genetic Disorder | $2.3 Million drug is needed to save 7-month old Baby Novah

March 23, 2022April 6, 2022

Reading Time: 3 minutes …

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Health

Cape Town siblings may have a new genetic variant that has not yet been recorded worldwide. 

March 22, 2022April 6, 2022

Reading Time: 5 minutes …

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Porky's Post

Running 100 miles for boy with Congenital Muscular Dystrophy

September 18, 2018

Reading Time: 3 minutes …

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Porky's Post

Update: Bianca Ackhurst on the Road to Recovery after GBD diagnosis

August 27, 2018

Reading Time: 2 minutes …

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Porky's Post

Aidan (14) needs a Liver Transplant to treat Rare Condition.

July 23, 2018July 23, 2018

Reading Time: 3 minutes …

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Porky's Post

22 year old left Paralysed after Rare Diagnosis

July 15, 2018July 16, 2018

Reading Time: 3 minutes …

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