Loadshedding Adds to 11-Year-Old’s Struggle with Rare Disorder and Ventilator Dependence

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Elizabeth Jordaan, an 11-year-old girl from Robertson, Cape Town, is a testament to the human spirit’s resilience and determination. Despite the odds stacked against her since birth, Elizabeth remains an energetic and positive child who is eager to learn and experience life to the fullest.

When Elizabeth was just 6 months old, she was diagnosed with Spinal Muscular Atrophy with Respiratory Distress (SMARD), a rare genetic disorder that affects muscle strength and causes respiratory distress. As a result, Elizabeth has been dependent on a home ventilator to help her breathe, which her mother, Sanet Jordaan, watches over like a hawk.

Living on a farm in Robertson, an hour away from the nearest hospital, Sanet is plagued by the fear of what could happen if the home ventilator stops working or gives problems. The fear is compounded by the ongoing load shedding and power outages in South Africa, which can leave Elizabeth vulnerable and in danger.

But despite the challenges, Elizabeth is a bright, talkative, and loving child who is eager to learn and experience life to the fullest. She is an inspiration to everyone who meets her, a reminder that there is always hope, no matter what life throws our way.

To help Elizabeth and her family cope with the ongoing struggles of her condition, as well as loadshedding, a crowdfunding campaign has been launched on BackaBuddy. The campaign aims to raise funds for a backup ventilator, which will provide Elizabeth with the peace of mind and security that she deserves.

The campaign has received an outpouring of support from the public, with contributions from 20 donors totaling R72,302 so far. Despite this, the family is still far from their target of R200 000, and they are appealing to the public for support.

Elizabeth’s story is a testament to the human spirit’s resilience and determination. It is a reminder that even in the face of life’s toughest challenges, there is still hope, and that every small act of kindness can make a big difference. By supporting Elizabeth and her family, we can help ensure that she has the tools she needs to live life to the fullest and breathe easy.

To support Elizabeth’s campaign, visit: https://www.backabuddy.co.za/elizabeth-jordaan-5459752366835439927

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